I am 48. Thirteen years ago, on April 25, 1999 my daughter Jenni gave birth to the most perfect little bundle of joy. Celeste Alena. Jenni was 15. I was 35.
I remember walking around with the silliest grin on my face for days. I smiled so much my face muscles ached π My daughter was an amazing birther, short fast labor, just like me.
We were surrounded by people who were important to us. Carolyn, my partner in birth, Lisa Wick, my midwife friend from school, there to take over if I needed to be Jenni’s mom instead of midwife, Ray, Celeste’s father, Dodi, who gave birth to a 10 lb 12 oz boy the October before and Candy, a family friend who videotaped the birth.
We reveled in Celeste’s perfectness. Her sweetness, how wonderful she breastfed, how well she slept.
Around 5 weeks old, I started feeling something was “off” about Celeste. She looked through you, not at you and she wasn’t tracking us with her eyes. Our family pediatrician told me to be the grandma, not a midwife… that everything was normal. I wasn’t happy with that. At 9 weeks old, I secured a consult with a pediatric opthomologist. he diagnosed Celeste with a retinal issue and said she was legally blind. Devastating, but doable. I was actually relieved.
At our 13 week visit to the pediatrician, we brought her the info from the eye doctor. She was humbled by it, and murmured an apology. She had been our family ped since 1981, I understood. Then as she was examining Celeste she uttered the one word that threw our lives upside down… MICROCEPHALY… I burst into tears, knowing the gravity of such a diagnosis. Dr. Rojas was also very emotional… Poor Jenni and Ray had no idea why we were upset. Microcephaly means small head/brain. Back in 1999 if you searched (there was no google) the term, it came up “profound retardation, short life span, approximately 10 years”. We were devastated.
A neuro consult 2 weeks later would give us the diagnosis of Agenesis of the Corpus Collosum, essentially Celeste is missing the middle part of her brain, the part that separates the left and right hemispheres. She is severely disabled. She does not stand, walk, sit or talk (a few words every once in a while)
She DOES bring happiness to those around her, have the most brilliant smile, loves stealing toys from babies if she’s propped close enough, has a clever streak, understands EVERY WORD YOU SAY!!!
She is 13 today… A teenager. I’m a grandma to a teenager… WOW!
Here she is, the center of our universe!
HAPPY 13th BIRTHDAY, CELESTE ALENA BLANKENSHIP!!!
I love you,
You know it’s true…
Celeste Alena Blankenship,
I LOVE YOU… Momma xoxoxo
Happy 13th Birthday Celeste and congratulations granny
Thank you, Annieta π
Hi Sandi, Happy 13th Birthday to your beautiful granddaughter Celeste, thanks for sharing her birth story xxx
Thanks, Meg!
Lovely Story!
Thank you, Andrew. I’m a pretty lucky lady!
That’s just too beautiful!
Thank you π
A beautiful life story. Happy Birthday, Celeste.
Thank you!!!
happiest 13th birthday to your beautiful granddaughter celeste!
what a GORGEOUS family you have!
xxoo !
Thanks, Cyn. I’m blessed with a pretty awesome bunch!
I will happily pass on the birthday wishes to Miss Celeste this afternoon when she comes home from school, Thank you all very much.
And happy BIRTH day to you, Jenni.
Happy Birthday to your girl! I can hardly believe the changes in your face from that photo to now. I hope Celeste’s family is awarded the mobility van … I’m off to vote .. again! π
MJ
Tanks, MJ. That photo was just 15 months ago! Lots of change since then π
It’s really amazing!! I’m so, so proud of you π
Beautiful tribute to a beautiful child from her wonderful grandmom.
Thanks, Mom π
Brought tears to my tired eyes.
We are all fortunate to have Celeste in our lives π
xoxoxox
Thanks, my friend!
Lovely. Just lovely. π
Thank you, Lorie π
oh my goodness you made me cry. we should all be so touched by a beautiful story, and life.
Thanks, Sandra… And double thanks for reblogging π
You betcha! It is a beautiful story, wow.
Reblogged this on Yakkergirl's Blog and commented:
One can find joy in any situation.
Happy Happy Birthday Celeste. Thirteen years old π Love the family photo of you all. xo
*anna
Thanks, Anna. My pseudo-niece Aleisha took the photo… She’s awesome!
Happy birthday sweet Celeste.
Thanks, Jonelle!!!
You brought me to tears with this one…How sweet and how lucky you are to have her and she you. Happy Birthday, Celeste. What a lucky little girl to have you for her grandma!
Thanks, Teri… she’s definitely surrounded by a “fam” club that adores her! I really think we’re the lucky ones!
That was very moving. I wish you and your lovely family all the best.
Thanks π